The Cochlear Bilateral Event and short stories of Gavin!

So on Tuesday night the 10Th of February. I went to the Cochlear Event. I learned alot. I learn that a person like Gavin with a implant on one ear and a Hearing aid on the other is called Bimodal. Cochlear is the company who made Gavin's implant the Freedom. With them you never have to go back into surgery to upgrade the internal piece inside the head. So what that means is that no matter how much better the technology gets. Gavin can always have the best. Cause the outer piece is what changes. The other two companies Me Del and Advanced Bionics can't do this with their implants. You have to go back to surgery to upgrade to better technology. I knew Heavenly Father told me Cochlear America would be the best choice for Gavin. Cause after praying about getting the implant and I got my answer that we should. I started reading about and praying about which one of three companies should we go with. I got a strong feeling that we should go with the Freedom. That was my answer. I'm so glad we did. Cause little did I know that alot of people have the Freedom. So I'm very happy with it. I met many families that night as well. We hope to get together for a play group sometime. We all exchanged contact info. It is good as a parent to see other parents going through the same things that you are going through. Also I received my second call from Senator Orrin Hatch staff. They wanted more information on the Bilateral implant. Utah is the only state in the Nation that doesn't cover the second implant . It is a law in all the another states it is consider standard of care. So in other states insurance companies have to pay for it. In each state they have a insurance commissioner who sits down and helps the insurance companies come up with their policy's. The second implant in Utah is consider experimental. We thought a little while back that it might be time for Gavin to get his second implant. But his hearing aid he is doing better than we thought so we wait til LVA takes his hearing. Cause that is LVA it will eventually claim all of Gavin's hearing in the right ear as well as it has all ready in his Left. So back to the second call I received the person I was talking with said they want to build a case on this. And ask me who to talk to. I gave them my audiologist name and number. My audiologist is the best in the state of Utah. I drive two hours to get to him. That is how good he is. So I'll be excited to see where it goes from here. Maybe I might be one of those select few that change a law who knows. I was talking to this lady at the Event. I told her my story and she well There's nothing in the world like Tick Off MA MA! Ann Lovell a good friend of mine who is a deaf adult and on the AG Bell Board with me. Was laughing so hard and saying that's you Heather That's you. It is true. This is something
that I'm definitely passionate about. Not just for my own child but any child who is deaf.

Gavin loves the wheels on the bus song. He is singing and it makes me laugh so hard. He is so sweet. Does the hand motions too. So sweet. He just barley really starting singing. He is getting better with the words. But he has the nailed the melody for sure. Thanks to the technology. That lets deaf people HEAR!!!


We don't know yet about the genetic testing seems to be taking a little longer than plan we hope to know by 23rd if Gavin has penried syndrome